shared pleasure, more pleasure...

tagged

ok, this is a first... i've never been big on words here and i've never been tagged before, but there's always a first for everything and kelly at where there's a will offered it to me:

what i was doing 10 years ago:

was freshly married and beginning to set roots in switzerland...living on a small lake and enjoying some of the the best sunsets in the world

5 things on my "to-do" list today:

1.make a copy of my birth certificate and send to my mom

2. physio (for me)

3.remember to pick up livia and her cousin early from childcare due to internal meeting

4.lots of misc. phonecalls/emails/etc.

5.cross these things happily off my list

bad habits (the list is long, these are just a few):

eating in the middle of the night/not writing down things we've run out of in the kitchen on THE LIST/going to bed too late/waking up grumpy/losing keys/wanting things MY way/forgetting not to sweat the small stuff/desiring perfection & not having it :-)

5 places i've lived:

1.toronto, canada

2.huntsville, canada

3.phoenicia, ny, usa

4.murten, switzerland

5.bern, switzerland

5 jobs that i've had:

1.waitress

2.yoga /dance teacher

3.somatic movement therapist

4.english teacher

5.professional contemporary dancer

4 people i want to know more about:

1.archie at lilliena!!!

2.tom at narrow ridge

3.karma at she's having our baby

4.jennifer at pinwheels

i like my fingers green

auntie robin, you're the best

for my friend, b

i'm holding your heart

in the palm of my hand-

like a treasure with strings 

of pearls and shining diamonds

i'm holding your heart 

in the palm of my hand-

beating as it does

alone in the night

i'm holding your heart

in the palm of my hand-

weeping like rain

as the mystery unfolds

i'm holding your heart

in the palm of my hand-

holding it high

to the night

and the fierceness

of blue visions

i'm holding your heart

in the palm of my hand-

and listening as it speaks

from far, far away

i'm holding your heart

in the palm of my hand-

seeing courage

and faith

keeping it close, close

to mine

i'm 2 now !

happy birthday to me ( 2days ago )

happy birthday to me

happy birthday dear livia

happy birthday to me!!!

HAPPY WORLD DOWN SYNDROME DAY

anyone dropping by today- please leave a comment saying hello! i'd love to have more contact...

FREE WILL

i just can't get it out of my mind that in some parts of the supposedly civilised world, women are LEGALLY allowed to  TERMINATE/ABORT at 7 months, BECAUSE their child has DOWN SYNDROME/ a handicap/a genetic disorder.

i know of someone who is probably going to do this tonight... even with her mother saying she would take the child and find a home for it. 

if the child's life would be terminated AFTER birth at 7 months, this would be called MURDER.

if the child didn't have a handicap/genetic disorder (and the mother's life was not threatened), this would be called MURDER.

FREE WILL CAN BE SUCH A CURSE.

conceptual art

skateboard girl, physio fun & bro's hat

little boy blue

for the love of banana

siesta time began here...

the sound on this makes it worthwhile...

talkative tuesday...

 

new idea: to also have a space for more words of the rambling kind...  

up until now i've been a pretty anonymous blog reader and recipient of the I & T support system (invisible & tangible) that this network offers. reading about other family's experiences with children having down syndrome has provided me with a gentle, steady sense of belonging to a community. this has been something both real and, a little bizarre seeing as i don't personally know anybody in that typical "know-people-kind-of-way". but considering that so much conversation takes place in this community regarding what "typical" is or isn't and all of the following ramifications, i guess it also fits.

after first dipping into this cyber world last fall, i followed the urge to also create a blogsite related to my daughter, livia milena, and open even more doors for family and friends living far away to be part of our lives. i have only been partially successful in this original venture, as a certain unwanted feeling of nakedness accompanied me, and i haven't completely wrestled my ambivalence regarding it into a solid corner. family and friends still receive most info and pic/video updates via email, and maybe it will always remain that way.

this wordiness of a new kind starts for me a different brand of door opening; one of reaching more actively towards this community and making myself visible and vulnerable as a searching, exploring member. i've also had many urges to respond, inquire, comment and request various things related to life including down syndrome, and have mostly not followed through. may this be a new beginning.

that said, i am a canadian living in bern, switzerland (and have been here long enough to also have: swiss citizenship; a good, passive understanding of the swiss german language; a poor but i-can-get-by usage of high german; a rapidly deteriorating grasp of my mother-tongue and, a feeling of being home). all that to say that i'm particulary interested in gathering information about what support systems are offered for children with down syndrome in other parts of the world.

both livia's papa and i are convinced of the necessity to be the best of advocates for supporting and encouraging her highest potential, and this includes (as anyone in this and other communities knows) being well informed, knowing the right questions to ask, not accepting small-mindedness for answers, paving new pathways and being open to learning constantly (to name just a few). sometimes this feels easy and natural, other times i am burdened by the weight of this responsibility and my challenged capacity to make decisions. i'm constantly wondering if i'm doing enough and particulary in light of the fact that switzerland seems to run on  fairly outdated templates of conservative thought. there are many good services offered- also covered by "invalidity" insurance (love that label), but integration is far behind and the general enthusiasm i feel in north america regarding the notion that "anything and all is possible... reach for the sky!" is acutely missing. sassiness is a word this culture does not know.

bottom line is, i'm strengthening my "pushy-mama-muscles" and am wanting to refine their usage... knowing when and where and how and to what degree they need to be employed. this goes hand-in-hand with wanting to keep our lives as "normal/typical/un-special/ordinary" as possible, which is most often the case. 

livia having 3 great brothers who live with us one week, their mother the next, certainly helps in achieving this goal. they have a sister they love and who tries to take away their cards when playing on the floor... and that's it. they only know the word "handicapped" in relationship to livia because we explained it to them, wanting them to know how others might label her and to prepare the ground for their own need to educate regarding who she is. 

i'll end for now with a favourite quote:

"Normal?? Well now, that's just a settin'  on your dryer, honey!"