day 26

 a major theme in our home...

day 25

   this is what mama has been doing this last week... working in bern with Cie.Willie Dorner/ "bodies in urban spaces". livia thought it was pretty funny to see us hangin' around town... (1st&2nd pic/willie dorner, 3rd pic/ BZ)

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day 24

   yummy mandarins on a sunny day...

day 23

day 22

we went fo a walk today

and it made me want to scream

to scream at the top of my lungs

that life is good 

and good is enough

and wherever we all are

in our lives

i wish everyone 

to know peace in their hearts

-no matter what we are given

day 21

day 20

talkative tuesday... today i'm just pissed off at myself for not knowing better, for not listening to myself more carefully, for still somewhere believing that THEY know more than i do... that my little world of reading blogs and thinking that my updated knowledge of how to best serve my daughter with down syndrome is actually enough.... and yet what super-powers need further exist? other lives go on with less knowledge, less bossing of therapists around, less bitching behind their backs, less trying to do it all perfectly within the illusion of sanity- everybody is juggling a 10-act show somehow in their lives- and i still have high visions and expectations and see that our little qt is thriving and more-than-surviving and shining her light on everyone around her, AND i still think there's more i could consciously be doing- and last night in my sleep, i committed to choosing happiness for my daughter as that which i really wish for her in this lifetime. 

once again, maybe i should do the same for myself.

day 19

thank goodness for straws, otherwise this little girl would hardly drink...

day 18

day 17

day 16

day 15

when i'm lost in my little self 

looking for purpose, meaning, direction

i should really jump on such a red car

and just go for a drive

day 14

day 13

 

day 12

day 11

day 10

day 9

day 8

wWALKING tTO tTHE sSTORE

my daughter's legs

fill with cement when she wishes,

except if i carry her

but this, we all know

streets become mountains

rivers uncrossable,

sidewalks filled with alligators

wherever we go

logic is hidden

the pattern unknown-

but movement comes

like magic dust

and the disasters reflow

then phone booths

become treasure islands,

bridges are crossed with ease,

her babbling spills out

with strangers and trees

then i can hardly stop her

not that i might-

her longing to buy bread

could fill up the night

thank god that i waited

patiently breathed,

while cement became water

splashing the leaves

day 7

on the way home from childcare...